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A Sense of the Physical Struggle

Tuesday, January 12, 2021

So many things that I'd like to share.

However, energy reserves and brain drain leave me unable to do so.

Still want to give folks a sense of the depth of the physical struggle.

For those that have followed my blogs for any length of time, you know that I've gone from turning cartwheels (as a woman in her late 50's) and running 10 miles with ease to struggling to physically manage the tasks of day-to-day living.

It was July 2018 when I suddenly lost exercise tolerance. I experienced it as a 'switch' being turned off. There are additional experiences that stand out in the years preceding that which may serve as 'trail markers' in the health decline experienced.

I cannot remember the last time I participated in any household tasks outside of being a helper in the kitchen or accompanying DH on errands. Winning the day consists of being able to get out of bed, dressed and tending to survival needs.

Also, cannot remember how long it has been that I've not retired to bed for some part of the day. And, despite 'resting' during the day. I'm doing things like sleeping in excess of 13, 14, 15 hours at night. Yes. That is in addition to the 'resting'.


In mid-November, a rebounder (mini trampoline) was purchased. The health care professionals are extremely concerned by my body's inability to manage physical exertion. I've been advised to bob for 30 seconds. I cannot call it rebounding because I've been admonished ... FEET ARE NOT TO LEAVE THE MAT!

First time I bobbed for 30 secs I ended up sleeping in excess of 14 hours. That's how little my body can tolerate.

I eventually tried two 30 second sessions in a day and was unable to sustain it. The first time I bobbed twice in a day, I ended up sleeping in excess of 15 hours.

I have managed to bob at least 30 seconds a day since the rebounding began.

In November 2020, sleep averaged 11 hours 40 minutes each night.

In December 2020, sleep averaged 11 hours 51 minutes each night.

As of today, January 2021 is seeing a sleep average above those values.

In late December additional blood work was completed. Results were not good.

We're perplexed. We meaning me and the health care professionals attempting to help me out.

One day at a time ...

P.S. For those of you that may be wondering, California is in a world of hurt, when it comes to SARS-Cov-2. We are extremely close to 3 of the 5 state regions being left with no ... that's right 0% ... ICU capacity. Last week our county announced that all of the county hospitals had officially entered what they call 'contingency' operations. Next will come 'crisis care' operations, unless this 'ship' can be righted. Four of the 5 state regions have been under Stay-at-Home orders for some time now. Me and DH have both had in-person appointments or business at our local medical clinic and medical center (which includes the hospital). I've had my eye out for the arrival of the mobile morgues. Wondering if they've been placed at the Coroner's Office. I've not seen them on the hospital grounds ... yet. The ER is operating out of tents in the parking lot and has been for some time. Suspect it is because the ER is operating as an ICU. Some of the reports coming out of Southern California are absolutely harrowing. Unfortunately, as I blogged a bit ago, much of this is already 'baked in'. Choices were already made. It is going to get worse.
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